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SANTINI v. SECRETARY OF DEPARTMENT OF HEALTH AND HUMAN SERVICES

No. 06-725V.

ESFANDIAR SANTINI and LAURIE OMIDVAR, legal representatives of a minor child, AYDIEN CLIFF OMIDVAR, Petitioners, v. SECRETARY OF THE DEPARTMENT OF HEALTH AND HUMAN SERVICES, Respondent.

United States Court of Federal Claims.

December 15, 2014.

Attorney(s) appearing for the Case

ESFANDIAR SANTINI, and, Petitioner, represented by Curtis R Webb .

LAURIE OMIDVAR, legal representatives of a minor child, Petitioner, represented by Curtis R Webb .

AYDIEN CLIFF OMIDVAR, Petitioner, represented by Curtis R Webb .

SECRETARY OF HEALTH AND HUMAN SERVICES, Respondent, represented by Linda Sara Renzi , U. S. Department of Justice.

PUBLISHED DECISION DENYING COMPENSATION1

CHRISTIAN J. MORAN, Special Master.

Esfandiar Santini and Laurie Omidvar are the parents of Aydien Omidvar, a developmentally delayed child, who is 11 years old. When he was born, Aydien had a mutation in a gene, known as the SCN1A gene, that creates a particular type of sodium channel. This sodium channel, which is known as Nav1.1,...

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